Will you help save hearts?

This is a letter I recieved today:


During the holiday season, we are especially reminded how precious family is and how precious our children are.

Earlier this year--even as the Duchenne community was pushing forward promising research, clinical trials, and other amazing achievements--we were receiving terrible news. In the past four months alone, we have lost six boys due to cardiac complications.

None of them had yet reached the age of 15.

Heart issues don't just affect some of our boys; they affect all boys with Duchenne. And, in fact, even carrier moms and daughters can eventually develop heart problems. We must face these issues of the heart as one community--as One Voice--and come together to find answers.

That's why Parent Project Muscular Dystropy is starting a new $2 million cardiac initiative in 2011. But to fund the vital research and advocacy at the core of this effort, we need your help.

Our goal is to raise $100,000 to launch our cardiac initiative by December 31st. Will you make a gift to kick-start this vital new effort?

We cannot afford to let these precious lives slip through our fingers.

For the cardiac initiative, PPMD will work with leading pediatric cardiologist, researchers, thought leaders, and the entire community to address the problem.

When you dontate to our new cardiac initiative, your money will help us fund vital research, support advocacy efforts with NIH funding, build consensus around care for the heart, and inform our community--including physicians around the world--about overall findings.

Every penny we raise online during this holiday season--and we're hoping for at least $100,000--will be put toward this urgent cardiac initiative. We're not naive. We know that it will take so much more to combat the heart issues every boy faces. But we have to start somewhere. And although we've taken great strides in improving and extending the function of our sons' bodies, we need to make sure their hearts are strong and healthy enough to handle the advances.

We've seen how powerful our community can be when we speak in One Voice. Let's save some hearts this holiday. Make a tax-deductible donation today.

Thank you for all that you do.

Best regards,


Kimberly Galberaith
Executive Vice President
Parent Project Muscular Dystrophy

WILL YOU CONSIDER DONATING TO THIS CAUSE TODAY?